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Fundraiser for Fatimat

Spinal muscular atrophy

“Your child has SMA - spinal muscular atrophy,” was the diagnosis Fatimat heard when her daughter was less than two months old. The news of the illness of their only child was a great shock for the parents. After all, the pregnancy was normal, the girl was born with 8-9 points on the Apgar scale.

But this is why SMA is insidious. At first glance, the child is perfectly healthy. Parents notice the problem after a while. Little Fatimat (the girl was named the same as her mother), signs of the disease began to appear three weeks after giving birth. The baby stopped wiggling her hands. Parents were on their guard, took the child for examination. Doctors diagnosed a serious illness. 

"SMA is an inherited genetic neuromuscular disorder that affects the motor neurons of the spinal cord and leads to progressive muscle weakness." Children with this diagnosis stop sitting, crawling, and cannot walk. Today, spinal muscular atrophy is incurable. But a timely diagnosis, proper care and medication can save the child from suffering.

To get competent medical advice and knowledge on how to cope with the manifestations of the disease, Fatimat's parents are going to visit the SMA Clinic in Moscow. But on the road the girl needs a set of equipment: an aspirator, an inhaler and a pulse oximeter. Used them, parents will be able to monitor the condition of the child. Our ward's family is unable to pay the cost of the devices.
The “Insan” Charity Fund opens a fee of 60,000 rubles for Fatimat Hadisova. Help the little girl get to the clinic and get qualified help in the fight against her illness.